Over the past 20 years, patients have been called upon to play an increasingly
active role in acquiring, coordinating and managing their own health care.
This month, the Robert Wood Johnson Foundation kicked off “Project HealthDesign:
Rethinking the Power and Potential of Personal Health Records.” The $4.1 million
initiative provides nine multidisciplinary teams around the nation with 18-month,
$300,000 grants to design and test new user-centered tools that will advance the
field of personal health record (PHR) systems.
Patricia Flatley Brennan, a professor of nursing and industrial engineering at the
University of Wisconsin-Madison, is the director of the project.
Brennan says that while for many, managing their own health information seems to be
an option, it is fast becoming an essential skill to ensure that the benefits of
molecular medicine and emerging practices be available to all people.
“Recently, the health informational technology community has devoted efforts to
building robust tools that help patients track health care results, manage payments
and maintain contact with their health-care providers,” she says.
“Project HealthDesign represents the next generation of health IT tools designed to
make the health information available to patients more useful and easier to act on”
Flatley Brennan says. “For example, a cell phone equipped with the patient’s
medication and allergy history could interact with an RFID (radio frequency
identity)-enabled aspirin bottle, warning that the product may include substances
that the patient is unable to tolerate.”
Brennan says building such tools requires two major changes to how health IT
applications are built.
“Patients must be involved early in the design process so that we can understand the
way health behavior fits into their daily lives and we need to build tools that are
likely to be helpful rather than burdensome,” she says. “We also need to design
really useful devices that work together with existing information systems.”
What about patients who don’t have access to computer technology?
“Some raise the concern that the ‘digital divide’ will keep disadvantaged people
from having access to these tools,” she adds. “As many aspects of contemporary
lives, from banking to accessing public assistance benefits, require access to the
Internet, innovative solutions to this problem are being created.”
